Nancy Kirkpatrick Youth Suicide Prevention Coordinator Office of School and Adolescent Health 300 San Mateo NE Suite 902 Albuquerque, NM 87108
Local Collaboratives Contact information Local Collaborative 1 (Santa Fe Rio, Arriba, Los Alamos)http://www.nmlc1.com/ Ben Tafoya, Rio Arriba Co-Chair
Marilyn Latham, Santa Fe County Chair
Joy Beery, Los Alamos Co-Chair, email@example.com
Local Collaborative 2 ( Bernalillo) http://www.bernloco.org/ For general questions about meetings and anything else BCLC related, you can always contactSarah, at firstname.lastname@example.org. I'm pretty good about answering e-mails, but it might take me a couple of days to get back to you. You can also contact Leigh Mason at email@example.com. Please feel free to ask questions. Chances are if you are wondering about something, others are, too! You can also snail mail us at: BCLC P.O. Box 35177 Albuquerque, NM 87176 Co-Chairs: Sarah Couchfirstname.lastname@example.org Gay Finlaysonemail@example.com Peter Cubrafirstname.lastname@example.org
Local Collaborative 5 (Chaves, Eddy, &Lea) http://www.mylc5.org/index.html 914 North Canal Carlsbad, New Mexico 88220 Telephone (575) 887-4653 Contact Person: Jesse Chavez
Local Collaborative 6 (Grant, Luna &Hidalago) http://www.nmlc6.org/ Grant County Community Health Council 2164 32nd Street Silver City, NM 88061 575-388-1198 575-534-1034 email@example.com Contact Person: Brandi Jemez Local Collaborative 7 http://www.jd7lc.org/
Local Collaborative 8- Union, Colfax and Taos UCTLC MISSION STATEMENT Utilize partnerships to foster best practices, unify decision making to create a culturally and socially diverse comprehensive continuum of care to empower the voices of the people in the communities of Union, Colfax, and Taos counties. Leads Team Lead – Carlos Miera, LISW Email: firstname.lastname@example.org (575) 758-1125
Union County Lead – Judith Cooper Email: email@example.com (575)374-2993
Colfax County Lead – Ferman Ulibarri Email: firstname.lastname@example.org (575)445-8568
Taos County Lead- Mary Passaglia Email: email@example.com (575)751-1420
Local Collaborative 12 Alamogordo 1900 10th Street Alamogordo NM 88005 Local voices to guide behavioral health planning and services. Be the voice of local communities. Help to create or enhance needed partnerships. Serve on subcommittees related to behavioral health issues. and Meet members of the local community and support a network of people who share the same concerns and wrestle with the same issues. Phone: 575.430.7642 Contact Grace at firstname.lastname@example.org or 575.430.7642. http://www.everythingalamogordo.com/flyer.php?num=136
Local Collaborative 13 Sandoval, Valencia, Cibola http://www.lc13.com The purpose of the Local Collaboratives is to develop strong local voices to guide behavioral health planning and services, a key consideration in the planning and design of New Mexico's Interagency Behavioral Health Purchasing Collaborative initiative. contacts Lana Blackman, LC13 Assistant- email@example.com Bobbie Taylor, LC13 Co-Chair- firstname.lastname@example.org Renee Edwards, LC13 Co-Chair- email@example.com Laura Malaj, LC13 Treasurer- firstname.lastname@example.org Sam Baca, LC13 Cross Agency Team Rep.(CAT)- email@example.com John Snowdon, Sandoval County- firstname.lastname@example.org Bonnie Snowdon, Sandoval County- email@example.com Kaye Sinclair, Sandoval County- firstname.lastname@example.org Cheri Nipp, Sandoval County- email@example.com Jill Doughtery, Sandoval, Valencia & Cibola- firstname.lastname@example.org Teri Sturgis, Valencia County - email@example.com Pamela Edmondson- firstname.lastname@example.org Michael Deierhoi- email@example.com Leslie Wirts,Valencia Countyfirstname.lastname@example.org Micheal Wirts,Valencia Countyemail@example.com Marilyn Salzman, Sandoval County Betty Rivera, Sandoval County Annie Kliss, Sandoval County
Local Collaborative 14 The Region 6 Local Collaborative serves the American Indian Tribes of New Mexico by addressing the behavioral health managed care needs of the entire community. Gus Abeita firstname.lastname@example.org Co-Chair
Toll Free New Mexico Consumer Service Numbers: 1(866) 660-7185 TTY - 1 (800) 855-2881
A SYSTEM OF CARE is an array of effective, community-based services and supports for children and youth with, or at risk of, mental health or other challenges and their families. The array of services and supports is organized into a coordinated network, builds meaningful partnerships with families and youth, and addresses their cultural and linguistic needs. The goal is to assist children and youth and their families to function better at home, in school, in the community, and throughout life. There are three Core Values associated with Systems of Care:
Family-driven and youth-guided, with the strengths and needs of the child and family determining the types and mix of services and supports provided Community-based, with the focus of services as well as system management resting within a supportive, adaptive infrastructure of structures, processes, and relationships at the community level Culturally and linguistically competent, with agencies, programs, and services that reflect the cultural, racial, ethnic, and linguistic differences of the populations they serve to facilitate access to and utilization of appropriate services and supports and to eliminate disparities in care Did You Know?
Mental Illnesses affect almost every family in America - and, by extension, nearly every family in our State. Most people recover from mental illnesses, but unfortunately many families don't recognize early signs of emotional and behavioral health problems or don't seek treatment for themselves or their children out of fear of what people may think.
One in five children is impacted by a mental health disorder. Mental disorders represent four of the ten leading causes of disability for persons age 5 and older.
1 in 4 adults suffer from a diagnosable mental disorder in a given year. 5%-9% of children in the United States have a serious emotional disturbance.
Depression and Bipolar Support Alliance 730 N. Franklin St., Ste 501 Chicago, IL 60654-7225 (800) 826-3632 http://www.dbsalliance.org/ The mission of the Depression and Bipolar Support Alliance (DBSA) is to provide hope, help, and support to improve the lives of people living with depression or bipolar disorder. DBSA pursues and accomplishes this mission through peer-based, recovery-oriented, empowering services and resources when people want them, where they want them, and how they want them.
The Balanced Mind Foundation 1000 Skokie Blvd. Suite 570 Wilmette, IL 60091 Phone: (847) 256-8525 Fax: (847) 920-9498 Contact Person: Susan Resko Executive Director email@example.com The Balanced Mind Foundation envisions a world where children living with mood disorders thrive because their families have the resources, community and support they need. Please watch for our communications from The Balanced Mind Foundation and set your spam filter to allow emails from thebalancedmind.org. The Balanced Mind Foundation…Bringing Hope Home. Adolescent Bipolar Foundation improves the lives of families raising children and teens living with bipolar disorder and related conditions. National Alliance For the Mentally Ill NAMI 2107 Wilson Blvd., Suite 300 Arlington, VA 22201-3042 Main: (703) 524-7600 Fax: (703) 524-9094 Member Services: (888) 999-NAMI (6264) From its inception in 1979, NAMI has been dedicated to improving the lives of individuals and families affected by mental illness. For three decades, NAMI has established itself as the most formidable grassroots mental health advocacy organization in the country. Protection And Advocacy 1720 Louisiana Blvd NE, Suite 204 Albuquerque, New Mexico 87110 (505) 256-3100 FAX (505) 256 3184 State wide toll free 1-800 432-4682 The Protection and Advocacy System (P&A) is a private non-profit organization which protects and promotes the rights of people with disabilities in New Mexico. Founded in 1979 and authorized through federal law and an Executive Order of the Governor, P&A is the states only legal rights center for people with disabilities. Each year, after public hearings and comment, P&A sets priorities for the cases and disability problems it will address.
Office of Consumer Affairs Behavioral Health Services Division P.O. Box 2348 37 Plaza la Prensa Santa Fe, NM 87504 Phone: 505-476-9274 or 800-362-2013 Fax: 505-476-9277 Internet: www.health.state.nm.us
Statewide consumer organizations are run by and for consumers of mental health services and promote consumer empowerment. These organizations provide information about mental health and other support services at the State level and are active in addressing and advocating for mental health system issues. For information about consumer activities in your area. The Family Network Phone 505.265.0430 Fax: 505.255.6578 Parent line: 800.273.PBDC Email: firstname.lastname@example.org The Family Networkis a nonprofit organization serving the state of New Mexico. PBDC was formed by families of children and adolescents with neurobiological, emotional and behavioral differences. A leader in the field of child and adolescent mental health, the organization provides individual advocacy, educational materials, and trainings and seminars for families, mental health professionals and the community at large. The Family Network advocates support familiesby advocating for them in the educational, service-delivery and juvenile justice systems. The goal of the Family Advocate is to assist the family in achieving the family’s desired outcomes for the success of their child and family. A Family Advocate acts as a learned partner bringing resources, options and ideas to the table.
Parents Reaching Out Main Office 1920 B Columbia Dr. SE Albuquerque, NM, 87106 1 (800) 524-5176 (505) 247-0192 The mission of Parents Reaching Out is to enhance positive outcomes for families and children in New Mexico through informed decision making, advocacy, education, and resources. Parents Reaching Out provides the networking opportunities for families to connect with and support each other. This mission supports all families including those who have children with disabilities, and others who are disenfranchised. Parents Reaching Out achieves this by*Developing family leadership * Connecting families to each other *Building collaborative partnerships * Providing families knowledge and tools to enhance their power Our Beliefs* Families need support where ever they are in their journey. * All families care deeply about their children.* Families need tools and support to accomplish their dreams. *All families are capable of making informed decisions that are right for their family. * Families in the state benefit from our organization having the staff and materials that meet their diversity. *Systems that listen carefully to the family perspective improve outcomes for our children. Our Goals are to Help Families* Decrease stress and isolation. * Increase their knowledge and use of available resources. * Increase their confidence and skills. * Enhance the education, understanding, and sensitivity of professionals. *Work for positive changes in the systems that affect our children. New Mexico Coalition Against Domestic Violence
Child Abuse Reporting 800-797-3260 Child Support Assistance 800-288-7207
Crime Victims Reparation Commission 505-841-9432 Dept. of Corrections Victim Services 877-842-8464 Lawyers Care Pro Bono Project 505-797-6000 Legal FACS 24 Hours Advocates 505-217-0464 Legal Resources DV Hotline 877-974-3400
Morning Star House, Inc. 505-232-8299
New Mexico Victims' Rights Project 800-773-3645
Bernalillo County Albuquerque Family Guidance Center
DWI Resource Center 888-410-1084 Albuquerque Indian Center (505) 268-4418 Albuquerque Police Victim Assistance Unit505 768 2104
Amistad Crisis Shelter for Youth at Risk 1706 Centro Familiar SW, Albuquerque, NM 87105 For more information, contact the Louise Lopez, Amistad Director at (505) 877-0371 or send an e-mail to email@example.com.
Amistad Crisis Shelter is a short-term (14-30 days) program that provides residential services to youth, ages 12-17. It operates 24 hours a day, 7 days a week, 365 days a year, and also offers a 24-hour hotline. It offers the following services: crisis intervention, assessment, counseling/therapy, recreational activities, life and social skills training, case management, educational/vocational assistance, job training skills, and referral assistance.
Its primary focus is to reunite youth with their families. In cases where reunification is not possible, alternative placement is secured, such as foster care, residential treatment, group home, independent living, or placement with other family members. Aftercare services are also available once youth discharge from the program. The program has a 16 bed capacity.
Youth At Risk is a United Way funded program that provides assessment and individual family counseling through services a licensed mental health therapist for children and youth, ages 10-21, and their families on an outreach basis. Cuidando Los Ninos 1500 Walter Street Southeast Albuquerque, NM 87102-4658 (505) 843-6899 The Cuidando Los Niños (CLN) model is a public/private partnership featuring the dedication, talents and energy of people committed to ending homelessness in the local community. CLN was created out of a grass-roots volunteer effort to address the needs of homeless families in Albuquerque, New Mexico in 1988. More than twenty years later, CLN is proving that we can help families end homelessness.
Enlace Comunitario is a social justice organization led by Latina immigrants in Central New Mexico. Our mission is to work to eliminate domestic violence in the Latino immigrant community and to promote healthy families through: comprehensive domestic violence intervention services in Spanish, preventative community education, policy advocacy and leadership development.
We are a non-profit community based organization that provides direct services to Spanish-speaking victims of domestic violence and advocates for the rights of Latino immigrants and their children. Our holistic approach includes counseling, legal services, community education, leadership development and organizing to impact system change.
The vision of Enlace Comunitario is that immigrants are a collective, conscious, and powerful force, free to create healthy and violence free families, where there is justice and human rights for all.
Legal Aid Society Of Albuquerque 121 Tijeras Ave NE, Ste 3100 Albuquerque, NM 87102
The Neutral Corner (Supervised Visitation Center) 118 Dartmouth SE, Albuquerque, NM 87106
Peanut Butter & Jelly Family Services PB&J Family Services, Inc. Administrative Offices and Peanut Butter & Jelly Therapeutic Preschool 1101 Lopez Rd. SW Albuquerque, NM 87105 Phone: (505) 877-7060 Fax: (505) 877-7063
PB&J Family Services, Inc. Satellite Office and Peanut Butter & Jelly Therapeutic Preschool 255-A Camino Del Pueblo Bernalillo, NM 87004
Phone: (505) 867-2356 Fax: (505) 867-2357 firstname.lastname@example.org Founded in 1972 as Peanut Butter & Jelly Therapeutic Preschool, PB&J pioneered the use of interactive parenting and bonding programs as an effective way to prevent child abuse and neglect and as a way to preserve the family unit.
PB&J believes that through intensive therapeutic counseling, support, parenting education, early intervention and prevention, and case management services, seriously challenged families can learn the skills necessary to survive and even thrive. Thus, helping to build the foundation for parents to provide a safe and nurturing environment for their children.
When Peanut Butter & Jelly Therapeutic Preschool first opened its doors in 1972 in a donated storage room, it was a two-person volunteer program serving two young children. In the 30-plus years since, PB&J Family Services has become a respected, nationally accredited agency with two permanent sites and some 90 employees, serving tens of thousands of children and families throughout Central New Mexico over the years.
Today, PB&J operates an ambitious range of programs throughout Central New Mexico dedicated to helping at-risk children within their families. Since day one, PB&J's commitment has been, and always will be, to respond to the needs of those families most in need of the services we provide.
Resources, Inc. S.A.F.E. House Shelter Univ. of New Mexico Victim Assistance Program Victim Assistance Bureau YWCA of the Middle Rio Grande 505-232-5239
SHELTERS FOR BATTERED ADULTS Chaves County Refuge for Battered Adults (Roswell) 505-627-8361 Cibola County Family Services Program (Laguna) Roberta's Place (Grants) 800-530-2199 505-287-7724 Colfax County Alternatives to Violence (Raton) 800-799-6484 Curry County The Hartley House (Clovis) 505-769-0305 Dona Ana County La Casa (Las Cruces) Las Cruces Police Victim Assistance Unit Southern New Mexico Legal Services 800-376-2272 505-528-4111 505-541-4867 Eddy County Battered Families Shelter (Carlsbad) Grandma's House (Artesia) Southern New Mexico Legal Services 505-885-4615 505-365-5144 505-541-4867 Grant County El Refugio (Silver City 888-538-2125 Harding County Alternatives to Violence (Raton) 800-799-6484 Hildago County El Refugio (Lordsburg) 505-542-8398 Lea County Options, Inc. (Hobbs) Southern New Mexico Legal Services 505-397-1576 505-541-4867 Lincoln County Southern New Mexico Legal Services 505-541-4867 Luna County The Healing House (Deming) 505-546-6539 McKinley County Battered Families Services (Gallup) 800-634-4508 CMora County Alternatives to Violence (Raton) 800-799-6484 Otero County C.O.P.E. Inc. (Alamogordo) Southern New Mexico Legal Services 505-437-2673 505-541-4867 Quay County The Hartley House (Tucumari) 505-461-4208 Rio Arriba County Community Based Services (Chama) Community Based Services (Espanola) Crisis Center Of Northern New Mexico Jicarilla Apache Social Services (Dulce) Peacekeepers DV Program (San Juan) 505-756-2327 505-470-3967 505-753-1656 505-759-3222 800-400-8694 Roosevelt County The Hartley House (Portales) 505-356-5379 San Juan County Family Crisis Center (Farmington) Navajo United Methodist Center (Farmington) Home for Women & Children (Shiprock) 505-564-9192 505-325-7578 505-368-5124 San Miguel County Alternatives to Violence Somos Familia 800-799-6484 866-898-8021 Sandoval County Haven House (Rio Rancho) Peanut Butter & Jelly Family Services 800-526-7157 505-877-7060 Santa Fe County Attorney General Victim Services Office Esperanza for Battered Families (Santa Fe) 505-827-6084 505-473-5200 Sierra County Abuse Intervention Center (Truth or Consq.) S. New Mexico Legal Services 505-894-3557 505-541-4867 Socorro County El Puente del Socorro Southern New Mexico Legal Services 888-545-4615 505-541-4867 Taos County Community Against Violence 505-758-9888 Union County Alternatives to Violence (Raton) 800-799-6484 Valencia County Peanut Butter & Jelly Family Services Shelter for Victims of DV (Belen) 505-877-7060 505-864-1383
National Advocacy Groups African-American Juvenile Justice Project Sherri Jefferson, Esq. Post Office Box 2041 Jonesboro, GA 30236 (770) 374-9591 Email: email@example.com Web: http://www.aajjp.org Legal advocacy for children. Provide services in child welfare, education, health, housing and juvenile justice/delinquency. Alexander Graham Bell Association for the Deaf and Hard of Hearing (202) 337-5220; (202) 337-5221 (TTY) Email: firstname.lastname@example.org Web: www.agbell.org
American Brain Tumor Association (847) 827-9910; (800) 886-2282 (Patient Services) Email: email@example.com Web: www.abta.org/ American Council of the Blind (800) 424-8666; (202) 467-5081 Email: firstname.lastname@example.org Web: www.acb.org
American Council on Rural Special Education (ACRES) (785) 532-2737 Email: email@example.com Web: http://www.acres-sped.org/
American Diabetes Association Government Affairs and Advocacy Division 1701 N. Beauregard Street Alexandria, VA 22311 (703) 549-1500 or (800) DIABETES Web: www.diabetes.org The American Diabetes Association is committed to ending discrimination against people with diabetes through its legal advocacy program. American Foundation for the Blind (AFB) (800) 232-5463; (212) 502-7662 (TTY) Publications available in Spanish Email: firstname.lastname@example.org Web: www.afb.org American Occupational Therapy Association (AOTA) (301) 652-2682 (Voice) Web: www.aota.org American Physical Therapy Association (APTA) (800) 999-2782; (703) 684-2782; (703) 683-6748 (TTY) Email: email@example.com Web: www.apta.org
American Society for Deaf Children (800) 942-2732; (717) 334-7922 (V/TTY) Email: ASDC1@aol.com Web: www.deafchildren.org
American Speech-Language-Hearing Association (ASHA) (800) 498-2071 (V/TTY); (301) 571-0457 (TTY) Publications available in Spanish; Spanish speaker on staff Email: firstname.lastname@example.org Web: www.asha.org
American Therapeutic Recreation Association (703) 683-9420 Email: email@example.com Web: www.atra-tr.org
Angelman Syndrome Foundation (800) 432-6435; (630) 734-9267 Email: firstname.lastname@example.org Web: www.angelman.org Anxiety Disorders Association of America (301) 231-9350 Email: AnxDis@adaa.org Web: www.adaa.org Aplastic Anemia & MDS International Foundation (800) 747-2820; (410) 867-0242 Email: email@example.com Web: www.aamds.org
The Arc (formerly the Association for Retarded Citizens of the U.S.) (301) 565-3842 Email: Info@thearc.org Web: www.thearc.org
Attention Deficit Disorder Resources Cynthia Hammer 223 Tacoma Av So Tacoma, WA 98402 (253) 759 5085; (253) 572 3700 (fax) Email: firstname.lastname@example.org Web: http://www.addresources.org Quality ADHD information, resources and support provided by a national non-profit organization
Autism Society of America (800) 328-8476; (301) 657-0881 Publications available in Spanish Web: www.autism-society.org
Brain Injury Association of America 8201 Greensboro Drive, Suite 611 McLean, VA. 22102-3816 (800) 444-6443; (703) 761-0750 Email: email@example.com Web: http://www.biausa.org Visit the web page for contacts to state-based organizations; Publications available in Spanish.
Center for Mental Health Services, Knowledge Exchange Network Publications available in Spanish (800) 789-2647; (301) 443-9006 (TTY) Email: firstname.lastname@example.org Web: www.mentalhealth.org
Childhood Apraxia of Speech Association (412) 343-7102 Email: email@example.com Web: http://www.apraxia-kids.org
Children and Adults with Attention-Deficit/Hyperactivity Disorder (CHADD) (800) 233-4050 (To request information packet) Email: firstname.lastname@example.org Web: www.chadd.org
Children's Craniofacial Association (800) 535-3643; (972) 994-9902 Email: email@example.com Web: www.ccakids.com Children's Liver Alliance (718) 987-6200 Email: Livers4Kids@earthlink.net Chronic Fatigue & Immune Dysfunction Syndrome Association (800) 442-3437; (704) 365-9755 Email: firstname.lastname@example.org Web: www.cfids.org Cleft Advocate (702) 228-8662; (702) 341-5351 (fax) Email: email@example.com Web: http://www.cleftadvocate.org Cleft Advocate provides educational and networking opportunities for cleft lip/palate and other craniofacial patients and their families, including assistance with insurance issues. Council for Exceptional Children (CEC) (703) 620-3660; (703) 264-9446 (TTY) Email: firstname.lastname@example.org Web: www.cec.sped.org/
Craniofacial Foundation of America (800) 418-3223; (423) 778-9192 Email: email@example.com Cued language Network of America (CLNA) P.O. Box 772 Heber City, Utah 84032 (866) 446-3855 Web: http://www.cuedlanguage.org DAC (disabled Action committee) Keith Kessler - Founder 14405 Artery Ln#11 Dale City, VA 22193 (703) 878-1737 Email: DAC4VA@aol.com Web: http://members.aol.com/DAC4VA/index.html Disability and Business Technical Assistance Centers (DBTACs) (800) 949-4232 Web: http://www.adata.org/dbtac.html DisAbility.gov Email: firstname.lastname@example.org Web: http://www.disability.gov/ The National Domestic Violence Hotline can be reached 24 hours a day, 7 days a week at 800-799-SAFE (7233) and 800-787-3224 (TTY). Spanish and more than 170 other languages are available. When you call, you will first hear a recording and may have to hold for a minute. Hotline staff offer crisis intervention and referrals. If requested, they connect you to shelters and other services and can send out written information.
The National Teen Dating Abuse Helpline can be reached 24 hours a day, 7 days a week at 866-331-9474, or TTY 1-866-331-8453. When you call, you will first hear a recording and may have to hold for a minute. The Helpline also has peer advocates available via live chat from 3:00 p.m. to 5:00 a.m. (Eastern Standard Time).
The National Sexual Assault Hotline can be reached 24 hours a day, 7 days a week at 800-656-4673. When you call, you will hear a menu and can choose #1 to talk to a counselor. You will then be connected to a counselor in your area who can help you. You can also visit the National Sexual Assault Online Hotline.
Federation of Families for Children's Mental Health (703) 684-7710 Publications available in Spanish Email: email@example.com Web: www.ffcmh.org
Foundation for Ichthyosis & Related Skin Types Web: http://www.scalyskin.org/
The Genetic Alliance (formerly the Alliance of Genetic Support Groups) (800) 336-4363; (202) 966-5557 Email: firstname.lastname@example.org Web: www.geneticalliance.org
Hydrocephalus Association (415) 732-7040 Email: email@example.com Web: www.hydroassoc.org
Independent Living Research Utilization Project The Institute for Rehabilitation and Research (713) 520-0232 Email: firstname.lastname@example.org Web: www.ilru.org
Institute on Independent Living Email: email@example.com Web: http://www.independentliving.org/
International Dyslexia Association (formerly the Orton Dyslexia Society) (800) 222-3123; (410) 296-0232 Email: firstname.lastname@example.org Web: www.interdys.org
International Fibrodysplaisa Ossificans Progressiva Association (IFOPA) P.O.Box 196217 Winter Springs, FL 32719-6217 Note: This organization is based in FL but has members around the world. (407) 365-4194 Email: email@example.com Web: http://www.ifopa.org/
International Resource Center for Down Syndrome (216) 621-5858; (800) 899-3039 (toll-free in OH only) Email: firstname.lastname@example.org
International Rett Syndrome Association (800) 818-7388; (301) 856-3334 Email: email@example.com Web: www.rettsyndrome.org
IsoDicentric 15, Advovacy, Exchange & Support 18 Kings Road Canton, MA 02021 (617) 686-8405 Web: http://www.IDIC15.org Isodicentric 15, abbreviated idic(15), is a chromosome abnormality which a child is born with extra genetic material; Affects - developmental disabilities, including cognitive disabilities, autism, and seizure disorders
Jonah & The Whale Foundation Mannie Taimuty-Loomis P.O. Box 981 Mars, PA 16046 (877) 49-JONAH; (877) 495-6624; (724) 772-4998 (fax) Email: Info@JTWF.org Web: http://www.JTWF.org The foundation provides families with Parent Binders and resource materials to encourage organization of medical and educational information for more responsible communication between parties involved.
Learning Disabilities Association of America (LDA) (888) 300-6710; (412) 341-1515; (412) 341-8077 Publications available in Spanish Email: firstname.lastname@example.org Web: www.ldanatl.org
Leukemia & Lymphoma Society (formerly Leukemia Society of America) (800) 955-4LSA; (212) 573-8484 Email: email@example.com Web: www.leukemia-lymphoma.org
Little People of America-National Headquarters (888) LPA-2001 Spanish speaker on staff Email: LPADataBase@juno.com Web: www.lpaonline.org
March of Dimes Birth Defects Foundation (914) 428-7100; (888) 663-4637 Publications available in Spanish Email: firstname.lastname@example.org Web: http://www.marchofdimes.org
1. U.S. Department of Veterans Affairs 2. Mental Health Home Page? www.mentalhealth.va.gov, 3. National Center for Posttraumatic Stress Disorder (PTSD) www.ptsd.va.gov 4. Veterans Centers-www2.va.gov/ directory/guide/vetcenter.asp 5. 5.U.S. Department of Defense Military Health System Mental Health Homepage- www.health.mil/Themes/ Mental_Health.aspx 6. 6. Substance Abuse and Mental Health Services Administration (SAMHSA) Veterans Homepage?www.samhsa.gov/vets 7. Veterans Suicide Prevention Hotline: 1-800-
Muscular Dystrophy Association (MDA) (800) 572-1717; (520) 529-2000 Publications available in Spanish Email: email@example.com Web: www.mdausa.org
National Alliance for the Mentally Ill (NAMI) (800) 950-6264; (703) 524-7600; (703) 516-7991 (TTY) Publications available in Spanish Email: firstname.lastname@example.org Web: www.nami.org
National Association of the Deaf (301) 587-1788; (301) 587-1789 (TTY) Email: email@example.com Web: www.nad.org
National Association of Private Schools for Exceptional Children (NAPSEC) (202) 408-3338 Email: firstname.lastname@example.org Web: www.napsec.com
National Ataxia Foundation (612) 553-0020 Email: email@example.com Web: www.ataxia.org
National Attention Deficit Disorder Association Email: firstname.lastname@example.org Web: www.add.org
National Brain Tumor Foundation (800) 934-2873; (510) 839-9777 Email: email@example.com Web: www.braintumor.org
National Center on Low-Incidence Disabilities at UNC Sheryl Muir Campus Box 146, McKee Hall University of Northern Colorado Greeley, CO 80639 (800) 395-2693; (970) 351-1061 (fax) Email: firstname.lastname@example.org Web: http://nclid.unco.edu/newnclid/ The National Center on Low-Incidence Disabilities addresses the challenges of school-age students who are blind/visually impaired, deaf/hard of hearing, or have siginificant support needs/cognitive.
National Center for Learning Disabilities (NCLD) (212) 545-7510; (888) 575-7373 Web: www.ncld.org
National Council on Independent Living (703) 525-3406; (703) 525-4153 (TTY) Email: email@example.com Web: www.ncil.org
National Cued Speech Association (NCSA) Information Services - Cued Speech Discovery (800) 459-3529 (TTY) Email: CuedSpDisc@aol.com Web: http://www.cuedspeech.org
National Disability Rights Network (NDRN)* * formerly the National Association of Protection & Advocacy Systems (NAPAS) 900 Second Street, NE, Suite 211 Washington, DC 20002 (202) 408-9514 ext. 122; (202) 408-9520 (fax); (202) 408-9521 (TTY) Web: http://www.ndrn.org The National Disability Rights Network (NDRN) is the nonprofit membership organization for the federally mandated Protection and Advocacy (P&A) Systems and Client Assistance Programs (CAP) for individuals with disabilities.
National Down Syndrome Congress 1370 Center Drive Suite 102 Atlanta, GA 30338 (800) 232-6372; (770) 604-9500; (770) 604-9898 (fax) Email: firstname.lastname@example.org Web: http://www.ndsccenter.org Promote the interests of persons with Down syndrome through advocacy, public awareness and information dissemination on all aspects of Down syndrome. The NDSC is a not-for-profit organization formed in 1973, governed by a 22 member Board of Directors, including individuals with Down syndrome.
National Down Syndrome Society (800) 221-4602; (212) 460-9330 Email: email@example.com Web: www.ndss.org
National Family Association for Deaf-Blind (NFADB) 111 Middle Neck Rd. Sands Point, NY 11050-1129 (800) 255-0411, ext. 275 Email: NFADB@aol.com Web: WWW.NFADB.ORG
National Federation for the Blind (410) 659-9314 Email: firstname.lastname@example.org Web: www.nfb.org
National Fragile X Foundation (800) 688-8765; (303) 333-6155 Email: email@example.com Web: www.nfxf.org
National Library Service for the Blind & Physically Handicapped (800) 424-8567; (202) 707-5100 Publications available in Spanish Email: firstname.lastname@example.org Web: www.loc.gov/nls
National Mental Health Association (800) 969-6642; (703) 684-7722; (800) 433-5959 (TTY) Publications available in Spanish Email: email@example.com Web: www.nmha.org
National Multiple Sclerosis Society (800) 344-4867; (212) 986-3240 Email: firstname.lastname@example.org Web: www.nmss.org
National Neurofibromatosis Foundation (800) 323-7938; (212) 344-6633 Email: email@example.com Web: www.nf.org
National Organization of Parents of Blind Children Carol Castellano, President National Federation of the Blind 1800 Johnson Street Baltimore, MD 21230 (410) 659-9314; (410) 685-5653 (fax) Email: firstname.lastname@example.org Web: http://www.nfb.org/nopbc A membership organization of parents working toward a better future for blind children by promoting blindness skills, fostering self-esteem, and utilizing blind adult role models.
National Organization on Fetal Alcohol Syndrome (NOFAS) (800) 666-6327; (202) 785-4585 Email: email@example.com Web: www.nofas.org
National Parent Network on Disabilities (202) 463-2299 (V/TTY) Email: firstname.lastname@example.org
National Parent to Parent Support and Information System, Inc. (800) 651-1151; (706) 374-3822 Email: email@example.com
National Reye's Syndrome Foundation (800) 233-7393; (419) 636-2679 Email: firstname.lastname@example.org Web: www.reyessyndrome.org
National Scoliosis Foundation (800) 673-6922; (781) 341-6333 Email: email@example.com
National Spinal Cord Injury Association (800) 962-9629; (301) 588-6959 Email: firstname.lastname@example.org Web: www.spinalcord.org
National Stuttering Association (800) 364-1677; (714) 693-7480 Email: email@example.com Web: www.nsastutter.org
National Tuberous Sclerosis Association (800) 225-6872; (301) 459-9888 Email: firstname.lastname@example.org Web: http://www.tsalliance.org/
Neurofibromatosis, Inc. (800) 942-6825; (301) 577-8984 Email: NFInc1@aol.com Web: www.nfinc.org
Obsessive Compulsive Foundation, Inc. (203) 315-2190 Email: email@example.com Web: www.ocfoundation.org
Oregon Parents United (541) 389-0004 Email: OPU@peak.org
Parents Helping Parents: Parent-Directed Family Resource Center for Children with Special Needs (408) 727-5775 Publications available in Spanish; Spanish speaker on staff Email: firstname.lastname@example.org Web: www.php.com
Parents of Galactosemic Children, Inc. (PGC) (775) 626-0885 Web: www.galactosemia.org
Pathways Awareness Foundation (800) 955-2445; (312) 236-7411 (TTY) Brochure and video available in Spanish Web: www.pathwaysawareness.org
Registry of Interpreters for the Deaf (301) 608-0050 (V/TTY) Email: email@example.com Web: www.rid.org
Smart Kids with Learning Disabilities PO Box 2726 Westport, CT 06880 (203) 226-6831 Email: Info@SmartKidswithLD.org Web: www.SmartKidswithLD.org Smart Kids with Learning Disabilities is a non-profit organization producing a national newsletter for parents of children with LD and ADHD (mailed to members in 49 states) and maintaining a website at www.SmartKidswithLD.org that is recommended by the CCLD. We also offer regional outreach programs.
Special Olympics International (202) 628-3630 Publications available in Spanish and French; Spanish & French speaker on staff Email: firstname.lastname@example.org Web: www.specialolympics.org/
Specialized Training of Military Parents (STOMP) 6316 S 12th Street Tacoma, WA 98465 (800) 572-7368; (253) 565-2266; (253) 566-8052 (fax) Email: email@example.com Web: http://www.stompproject.org Provides military parents with individual assistance & information about rights/responsibilities in special education services for their children located in the United States or overseas. STOMP serves all military families stationed in the United State and overseas.
Spina Bifida Association of America (800) 621-3141; (202) 944-3285 Publications available in Spanish Email: firstname.lastname@example.org Web: www.sbaa.org
Stuttering Foundation of America 3100 Walnut Grove Rd, Suite 603 PO Box 11749 Memphis, TN 38111-0749 (800) 992-9392; (901) 452-7343; (901) 452-3931 (fax) Email: email@example.com Web: http://www.stutteringhelp.org The Foundation provides free online resources to those who stutter and their families, works towards the prevention and improved treatment of stuttering, and supports research into the causes of stuttering.
TASH (formerly The Association for Persons with Severe Handicaps) (410) 828-8274; (410) 828-1306 (TTY) Email: firstname.lastname@example.org Web: www.tash.org
Technical Assistance Alliance for Parent Centers (the Alliance) (888) 248-0822; (952) 838-9000 Spanish speaker on staff Email: email@example.com Web: www.taalliance.org